At 19, she received the news that she had usher syndrome type iii. Not fade away is a deeply moving exploration of the obstacles we all face. Rebecca alexander is an author, psychotherapist, group fitness instructor, advocate, and extreme athlete who is almost completely blind and deaf. The memoir was short less than 300 pages, the story moved quickly birth to mid30s and it was written clearly and authentically. I promise that by the end of her story, you will fall just as in love with rebecca as i have.
I promise that by the end of her story, you will fall just as in love. A memoir of senses lost and found has 5 available editions to buy at half price books marketplace. A memoir of senses lost and found gotham, september 2014, by rebecca alexander. A site dedicated to book lovers providing a forum to discover and share commentary about the books and authors they enjoy. Advance praise for not fade away a remarkable story of resilience and heart, not fade away follows rebecca alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. At about the time alexander s troubles began, she suffered another big blow. In not fade away, rebecca tells her extraordinary story, by turns harrowing. The inspiring and moving memoir of a young woman who is slowly losing her sight and hearing yet continues to live life to its fullest potential. Rebecca alexander tells the meredith vieira show what inspired her to write the book and how she deals with her new reality. The inspiring memoir of a young woman who is slowly losing her sight and hearing yet continues to live each day with grace and purpose thirtyfouryearold rebecca alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. Author rebecca alexander shares hearoclub promotion.
Rebecca alexander northern virginia resource center for. Not fade away audiobook, written by rebecca alexander. Born with a rare genetic mutation called usher syndrome type iii, rebecca has been simultaneously losing both her sight and hearing since she was a teenager. Sep 15, 2014 rebecca alexander s new memoir not fade away is a story of gradually losing her sight and hearing. Like the diving bell and the butterfly, rebecca s story is an exquisite. Born with a rare genetic disorder called usher syndrome type iii, rebecca has been losing both her vision and hearing since she was a teenager.
A remarkable story of resilience and heart, not fade away follows rebecca alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. Content includes books from bestselling, midlist and debut authors. In not fade away, rebecca tells her extraordinary story, by turns harrowing, funny and inspiring. Born with a rare genetic mutation called usher syndrome type iii, rebecca alexander has been simultaneously losing both her sight and hearing since she was a child, and was told that she would likely be completely blind and deaf by age 30. Not fade away not fade away audiobook, by rebecca alexander. In not fade away rebecca tells her extraordinary story, by turns harrowing, funny and inspiring. Meredith is friends with her brother peter alexander, and both peter and rebecca appeared on the show to talk about rebecca s book not fade away and the obstacles she has overcome. She will reflect on those moments 17 years ago and share how her life has changed. In series 2, rebecca alexander will read an excerpt from her book, not fade away, and discuss dating while going blind. A memoir of senses lost and found is being made into a major motion picture. Oz show in discussion of her book, not fade away, about living with usher syndrome type iii, which she cowrote with sascha alper.
Rebecca s story is an exquisite reminder to live each day to its fullest. Discover not fade away as its meant to be heard, narrated by tavia gilbert. A memoir of senses lost and found rebecca alexander, with sascha alper. A frightening diagnosis is only start of the story in not. Sss not fade away series 2 video usher syndrome society. Her first book, not fade away, is a deeply moving exploration of the obstacles we all facephysical, psychological, and philosophical. She has appeared on today, morning joe, the meredith vieira show and the dr. In college, she found out that due to a rare genetic disorder usher syndrome type iii. Born with a rare genetic mutation called usher syndrome type iii, rebecca alexander has been simultaneously losing both her sight and hearing since she was a child, and she was told that she w. A remarkable story of resilience and heart, not fade away follows rebecca alexander as she must navigate the world cursed with a rare genetic.
No one would blame rebecca alexander if she gave up on life. Thirtyfiveyearold rebecca alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. We will be introducing alan pinto, the love interest in rebecca s story, and his perspective of the then and now. It is a gripping story, an offering of hope and motivation, and an exquisite reminder to live each day to its fullest. She meditates on what shes lostfrom the sound of a whisper to seeing a sky full of stars, and what shes found in returnan exquisite sense of intimacy with those she is closest to, a love of silence, a profound gratitude for everything she. Fading sight and sound turn oakland native into a fighter j. She meditates on what shes lost from the sound of a whisper to seeing a sky full of stars, and what shes found in return a unique sense. Not fade away by rebecca alexander, sascha alper audiobook.
A memoir of senses lost and found is a compelling account of her journey, starting with childhood and ending with her fairly recent acquisition of a cochlear implant. Above all, rebecca alexanders book left me feeling more humble than i could imagine. Praise for not fade away a remarkable story of resilience and heart, not fade away follows rebecca alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. Not fade away is the inspiring memoir of a young woman who is slowly losing her sight and hearing ye. Its a rare genetic mutation with profound consequencesloss of sight and sound. Rebecca has usher syndrome, but she does not let that stop her. Id never heard of rebecca alexander or her story, so i wasnt sure what i was getting into with this memoir.
Nbcs peter alexander and his sister rebecca talk about their new book not fade away a memoir and a unique look at the obstacles we all face whether its physical, psychological or. Rebecca alexander returns to headroyce to discuss not fade. Born with a rare genetic mutation called usher syndrome type iii, rebecca alexander has been simultaneously losing both her sight and hearing since she was a child, and was told that she would likely be. Bereft of selfpity, funny, and bursting with honesty, not fade away will get its hooks in you. In series 2, rebecca alexander read an excerpt from her book, not fade away, and discussed dating while going blind. Rebecca alexander is the author of not fade away 3. Not fade away benefits from the insights gained in her training and practice, though sometimes she seems to willfully ignore certain things about herself. She also has usher syndrome type iii, and is almost completely blind and deaf. Choose from contactless same day delivery, drive up and more. Penguin random houses gotham books describes not fade away as the. The inspiring and moving memoir of a young woman who is slowly losing her sight and hearing yet.
Eventually, doctors realized she was suffering from usher syndrome, a condition that would cause her to become both deaf and blind. The official page of rebecca alexander, author of not fade away. Not fade away is a deeply moving exploration of the obstacles we all face physical, psychological, and philosophical. She is also almost completely blind, with significantly deteriorated hearing. Rebecca alexander returns to headroyce to discuss not. Rebecca alexander not fade away monday, september 22, 2014 7. Sep 11, 2014 rebecca alexander s not fade away is a journey thats filled with a full range of emotions from sad and shocking to funny and hopeful.
A memoir of senses lost and found alexander, rebecca a. Not fade away is both a memoir of the senses and a unique look at the obstacles we all facephysical, psychological, and philosophicalexploring the extraordinary powers of memory, love, and perseverance. A memoir of senses lost and found ebook written by rebecca a. In not fade away, rebecca charts her journey from a teenager who tried to hide her disabilitie. Oct 01, 2014 rebecca alexander returns to headroyce to discuss not fade away. Not fade away is a deeply moving exploration of the obstacles we all facephysical, psychological, and philosophical. Rebecca alexander on her book not fade away and slowly.
Even a darkening world can be brilliantly lit from within. Rebecca ann alexander born february 4, 1979 is an american psychotherapist and author. Rebecca and hearoclub have partnered to provide a free copy of rebeccas book not fade away to members signing up for hearing aid and. Rebecca alexander has usher syndrome, and she has been losing her sight and hearing gradually. Thirtyfouryearold rebecca alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. Book to screen in the news video interviews fully booked podcast. Not a light read to be sure, but as only rebecca can, this book takes the scariest and loneliest aspects of our lives and creates space for laughter, love and hope. Rebecca alexanders indomitable spirit spills out on to the pages of this. Rebecca alexander shares her thoughts on not fade away. A memoir of senses lost and found is profound and illuminating. Today, rebecca alexander is an awardwinning author, psychotherapist, keynote speaker, group fitness instructor, disability advocate, and extreme athlete.
Even a darkening world can be brilliantly lit from. A portion of the books proceeds will be donated to the usher syndrome. Sep 15, 2014 not fade away a memoir of senses lost and found by rebecca alexander with sascha alper. Download for offline reading, highlight, bookmark or take notes while you read not fade away. Then, at 18, a fall from a window left her athletic body completely shattered.
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